The chronic pain of lupus can affect anyone from 15 to 50 and it does affect nearly 2 million Americans. As an autoimmune system, the lupus sufferer's body is under attack. The skin, joints, kidneys, heart, lungs, the eyes, the nervous system and blood-making cells can all suddenly become targets. While currently there is no cure for lupus, the disease can be treated in different ways to minimize damage. For cases that are mild, your primary care doctor can monitor or recommend medication. If the lupus has progressed and affected other organs, a specialist like a Dermatologist, Cardiologist, Nephrologist or Neurologist may be needed.
There are five types of lupus: systemic lupus erythematosus, which affects the joints and organs; discoid lupus, which affects the skin; sub-acute cutaneous lupus erythematosus, which is characterized by skin lesions; drug-induced lupus that develops after a drug reaction; and neonatal lupus that affects newborns. Lupus signs include: fatigue, fever, weight loss/gain, joint pain/stiffness/swelling, butterfly rashes on the cheeks, skin lesions that worsen with sunlight, mouth sores, fingers and toes that turn white or blue in the cold, shortness of breath, chest pain, dry eyes, easy bruising, anxiety, depression and/or memory loss. The Lupus Foundation reports that there are not two cases of the disease of Lupus that are identical. Signs may emerge gradually or come on suddenly, and can be mild or severe. Most people have "flare-ups" or episodes. To test for lupus, your doctor will ask you some questions, run a standard physical, take urine and blood samples and perform an electrocardiogram.
Discoid lupus erythematosus (DLE) manifests itself as an inflammation, with rashes and scarring on the face, ears and scalp. The lesions may be inflamed, scaling or crusty in appearance, with the centers lighter and the rims darker. A small percentage of these patients have internal organ failure too, but usually symptoms are primarily skin-related. Cortisone ointment or injections can be helpful in treating the flare-ups. Drugs like Plaquenil, Aralen, Imiquimod, Quinacrine, Accutane or Soriatane are sometimes prescribed but should be carefully monitored for side effects.
If you're diagnosed with lupus, then it's important that you get 8-10 hours of sleep each night. Remember that even small amounts of sunlight can hurt your skin, so wear protective clothing, such as long shirts and pants, use SPF 15+ sunscreen, avoid tanning beds and use plastic devices that block UV emissions from indoor lights. Getting regular exercise is also important in recovering from flare-ups, reducing heart attack risks and fighting depression. If you're a smoker, then doctors recommend that you quit because the risk of cardiovascular disease increases with the added vascular stress caused by nicotine. Lastly, eat a healthy diet of fruits, vegetables and whole grains. To keep your mood elevated, the Lupus Foundation offers educational programs, counseling, group exercising classes and community events like "Walk For Lupus" to help raise money and awareness. Becoming an advocate is a great way to regain a sense of control.
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